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International FOP Association - IFOPA

North Kansas City, Missouri

Cause Description:
To fund research to find a cure for fibrodysplasia ossificans progressiva (FOP) while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. FOP is an ultra-rare disease in which normal bone forms in muscles, tendons, ligaments, and other connective tissues, forming an extra skeleton that immobilizes the body. The IFOPA was founded in 1988 to end the social isolation imposed by this rare, debilitating disease.

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